Research Proposal: Educational Implications for an Individual Suffering from Congenital Insensitivity to Pain 1.0 Introduction Hereditary Sensory and Autonomic Neuropathies (HSAN) is composed of different inherent disorders that are closely related to the dysfunction of the senses…
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In addition, according to Rare Diseases UK (n.d.a), most parents with children who are suffering from rare diseases like the CIP have felt neglected from the system, such as the educational system, considering that their children went to secondary schools. With this implication, it is essential to improve the wellbeing of individuals suffering from CIP, and to insure that they would receive the maximum aid and assistance, which they are entitled to. With this on hand, this research proposal will be referring to medical, social, and holistic models of disability to understand and explore the implications of CIP to the educational involvement of patients. 2.0 Purpose The purpose of this paper is to examine the educational implications of an individual who is suffering from a congenital insensitivity to pain (CIP). In view of this, the paper will also examine how schools ensure students with CIP in the secondary level access full entitlement and on what manner can they progress in the national level. Aside from this, the proposal will try explore the medical, social, and the holistic model of disability in terms of understanding the implications of CIP in a student with the said disorder. ...
Also, it had been alarming that as much as 30% of these children would die before they turned five (Rare Diseases UK, n.d.a). With this on hand, it can be inferred that the educational approach on students with CIP must be adopted and incorporated in school curriculums in order for them to attain the education they need. 4.0 Literature Review Congenital insensitivity to pain (CIP) is a disorder, which is a part of the Hereditary Sensory and Autonomic Neuropathies (HSAN). Also, CIP is considered as a rare disorder that is primarily distinguished with the absence of feeling or reacting towards pain stimuli. Most people with this disorder can be diagnosed during early childhood due to their inability to cry and react towards pain. There have been two common types of congenital insensitivity that have been diagnosed from the patients suffering from this disorder. These two types are congenital insensitivity to pain (HSAN - V) and congenital insensitivity to pain with anhidrosis (HSAN - IV). The focus of this study is the congenital insensitivity to pain (HSAN - V) and the cause of this disorder has not yet been clearly identified (Praveen, et al., 2010). In addition, due to studies conducted with regard to CIP, clinical assessments with the individual having this kind of disorder were done in terms of focusing on the lesions on the nervous system. With regard to this assessment, it was greatly accepted that the impaired perception of pain due to mental retardation, trauma, or infection is not under the scope of CIP. In addition, peripheral neuropathy became an added criterion in diagnosing and in differentiating CIP from a congenital indifference to pain due to the enhancement of microscopic and morphometric assessment of CIP (Nagasako, et al., 2003). Moreover, ...
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