The quality of life was measured with the TNO-AZL Adult Quality of Life questionnaire. The groups were compared by the Mann-Whitney U test. The study was carried at 95% confidence interval. The results indicated that patients with sickle disease had a significantly lower quality of life on all subscales as compared to the Dutch norm population. The abstract of the study is a complete overhaul. It gives clear and more defined information of what to expect and what the study is all about. However, the objective of the study is not widely stated considering the fact that it is not mentioned anywhere else in the study apart from the abstract. Citation Type of study Location setting Variables Framework theory Study design Sample The study is quantitative in nature. The quantitative variables are well designed and explained. Department of Pediatric Rehabilitation of the Medical University of Bialystok All female caregivers or mothers of children with SCD who visited the outpatient clinic of the study center at least one year ago were invited to participate in the study. The dependent variable: quality of life of caregivers of children with sickle cell disease. Independent variables: socio-economic and ethnic background. Control group: female caregivers of healthy children. Considering the fact that the study is quantitative in nature, the existence of both independent and dependent variables is justified. The theoretical perceptive of the study is not discussed. This compromises the validity of the results because there is no link between the theoretical literature and the results of the study. However, the study does borrow some empirical perspectives from other studies. But empirical studies without theoretical perspective still limit the results of the study. All female caregivers or mothers of children with SCD who visited the outpatient clinic of the study center at least one year ago were invited to participate in the study. Because the study is a qualitative type of study, a questionnaire on the social and financial consequences of caring for children with a chronic illness was developed as part of a larger study. the questionnaires are designed in a way that it took one hour to complete the whole questionnaire. In addition, the study used the TAAQoL questionnaire for persons above 16 years, to measure the health status problems and limitations. SPSS was used to analyze the data and the results were well conveyed using the statistical methods of presenting data. The research design matches the approach and research hypothesis. However, one limitations of the study design is that it does not give much comparisons between the independent, dependent and control groups. Another limitation of the design is that it doesn’t clarify the type of data required for the study and instead it describes methods of colleting and analyzing data. The study used a sample of 700 from the reference population of similar gender and ages as the caregiver of the children with SCD. But the absence of the formula used to calculate the sample size makes the validity of the sample size in question. Strengths The study has a strong research design.
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The main objective of the study “Children with sickle cell disease” was to evaluate the quality of life of caregivers of children suffering from sickle cell disease. A total of 700 healthy Dutch females and female caregivers were interviewed…
While prevalent to certain race origins, the treatment of, control and reduction of pain among SCD patients has become an integral approach towards delivery of equitable health care services. The patients with SCD has been identified to be mainly from marginalized groups – poor and ethnic minorities
Vichinsky reported that acute and painful episodes, which can last from two to seven days, are the most common reason for SCD patients to seek emergent medical care. The believes that this population had an opioid addiction acts as a major barrier preventing patients from receiving effective pain management during acute pain episodes.
This paper take a look at some of the various ways that the disease affects the lives of people and how this disease can be controlled and managed without causing death. A series of articles and books have been used here as the main sources for getting the useful information used here.
The patients with SCD has been identified to be mainly from marginalized groups – poor and ethnic minorities. Pain treatment among SCD patients reflects not only the access and availability of health care but also prevailing practices and knowledge about the disease, its prognosis and pathology.
The diseased individuals inherit the genes from their affected parents and pass it on to their offspring. In sickle cell disease, abnormal haemoglobin S replaces the normal haemoglobin A due to alterations in the genes. The function of haemoglobin is to transport oxygen and deliver it to the different organs and cells of the human body.
However, the carriers will have the potential to pass on the affected gene to their offspring.
The chances of my friend being a carrier are one out of four. Both her grandparents were carrier of mutated CFTR as they were healthy and one of their progeny (uncle) had cystic fibrosis.
The other research article is Psychological therapies for sickle cell disease and pain (2002) by Kofi A. Anie and John Green. The first article provides a research study about the benefits of psychological treatments on the management of sickle cell disease in hospital patients.
Research shows that one in 12 African Americans and about one in 100 Hispanic Americans convey the sickle cell attribute, which implies they are bearers of the infection. Sickle cell sickness is brought about by a change in the hemoglobin-Beta gene found on chromosome 11.
5 pages (1250 words)Research Paper
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