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Name: Course: Institution: Instructor: Date: ARTTCLE 1 Quality of life of female caregivers of children with sickle cell disease: a survey-By Xandra W. van den Tweel, Janneke Hatzmann, Elske Ensink, Johanna H. van der Lee, Marjolein Peters, Karin Fijnvandraat, and Martha Grootenhuis Caring for a child suffering from sickle cell disease needs extra demand on parents both psychologically and practically, which may influence their quality of life.


The quality of life was measured with the TNO-AZL Adult Quality of Life questionnaire. The groups were compared by the Mann-Whitney U test. The study was carried at 95% confidence interval. The results indicated that patients with sickle disease had a significantly lower quality of life on all subscales as compared to the Dutch norm population. The abstract of the study is a complete overhaul. It gives clear and more defined information of what to expect and what the study is all about. However, the objective of the study is not widely stated considering the fact that it is not mentioned anywhere else in the study apart from the abstract. Citation Type of study Location setting Variables Framework theory Study design Sample The study is quantitative in nature. The quantitative variables are well designed and explained. Department of Pediatric Rehabilitation of the Medical University of Bialystok All female caregivers or mothers of children with SCD who visited the outpatient clinic of the study center at least one year ago were invited to participate in the study. ...
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