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Running Head: GENETIC DISORDER Helping the 1 Helping the Trosachs face Tay-Sachs in their Unborn Child Name Class Date Helping the Trosachs face Tay-Sachs in their Unborn Child Introduction The news of pregnancy is usually a happy and wondrous time, especially for a couple who has been waiting a very long time for pregnancy to occur.
The parents are currently in confusion and denial. As a nurse handling the coordination of their plans for handling the care of this yet unborn child, it will be important to give clear advice and instructions in order to facilitate the best possible outcomes in a very difficult prognosis. The Interdisciplinary Team Because of the complexity of the situation with the Trosacks, it is important that an interdisciplinary team be constructed to fulfill all the needs that they will have as they progress through the pregnancy, and then into dealing with the issues that their infant will present. Ideally, a therapist who has special knowledge of special needs children and the issues their parents face would be the most beneficial. Starting before the child is born will help them to emotionally prepare for the circumstance of their child having Tay-Sachs. Establishing the relationship with the therapist will begin their journey and in addition the services of a priest who is in touch with the family during the course of their child’s life may provide a source of comfort as they proceed through the experience. According to Desnicck and Kaback (2001), parents of children with Tay-Sachs experience the death of their child three times. ...
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